In my last blog I talked about the big scan day. I had the BIG scan on 1-14-19 and I went and got the disc and written conclusions the next day even though I wouldn’t see my oncologist until 1-23-19. Just as implied in the Beatles song, the news wasn’t good.
As you may remember I had two Y90 procedures. The first one was effective in that it encapsulated one side of the tumor. That means that one side has crusted over and was not growing. A partial response you might say. The other side didn’t respond and has grown. In addition, there are two smaller lesions (tumors) on that same lobe. This is an indication that the tumor is actively growing and spreading.
This means the hope of surgery and a possible cure is not going to happen. It also means that from this point on the goal will be trying to halt the progression and extend my life. It is important that I wrap my head around the fact that I will not have a cure. I don’t like it, but it was a longshot at best. The only cure will come when I transition to my spirit world. I hope that is a while.
In discussions with my oncologists we discussed the results and what they meant for me. One of the first questions I asked was what I could expect if we did nothing. He responded that I will most likely have 4-6 months to live. I responded by saying “Then by all means let’s do something!”
The something that we decided was that I would start a chemotherapy regiment that is in the form of a daily pill called Lenvima. A relatively new drug approved as a first line agent for HCC liver cancer in late 2018. Here is the link:
It does have some common and some rare side effects. I am not thrilled about it because I know what chemo does to the body. However, if I can tolerate it well it has the potential to slow down the progress of the monster growing in my liver.
I also discussed the use of active hexose correlated compound that my integrative medical doctor had shared with and suggested a dosage. It has shown to extend the lives of patients with my type of cancer. My Oncologist agreed it was ok to use with my other treatment. See below.
AHCC Liver Cancer Research #1: Clinical Study, Results.
Thammasat University Rangsit Campus, Patumthani, Thailand.
Prognostic improvement of patients with advanced liver cancer after AHCC treatment
A prospective cohort study was performed with 44 patients with histologically confirmed liver cancer. Survival time, quality of life, clinical and immunological parameters related to liver function, cellular immunity, and patient status were determined. Of the 44 patients, 34 and 10 received AHCC and placebo (control) orally, respectively.
Results / Conclusion:
- Patients in the AHCC treated-group had a significantly prolonged survival when compared to the control group.
- After 3 months of AHCC treatment, patients showed significantly improved quality of life in terms of mental stability, general physical health status, and ability to have normal activities.
- This study suggests that AHCC intake could prolong the survival and improve the prognosis of patients with advanced liver cancer and delay the gradual decline of their physiological status.
So, with these two agents, my whole food plant-based diet, and my spiritual exercises I feel like I can extend my life. At this point I would not hazard any guess of the outcomes. So, the hope is that everything helps but every patient is different so the response may be different.
Of course, the concern is that the cancer may have spread outside my liver. Even if it has, the treatment will be the same. When I mentioned to my oncologist that I was having dizzy spells that I attributed to vertigo he suggested a brain scan to make sure my brain isn’t involved.
He also wanted to do a PET scan which will show where cancer is in my body below the head. It will light up anywhere there is cancer. That would include the cancer I know about and anywhere it may have spread. (I am hoping not) That will also give us a baseline so when we go back and scan in about 3 months we can tell if anything is working and whether to continue or move to a second line agent. It will take about 7-10 days to receive the medication.
And Oh, by the way, I have Medicare Part D coverage and the total cost of the drug is about $215,000.00 per year. That’s right!! My plan pays $15,390.59 per month and I am responsible for $2410.58 per month! However there appears to be some financial aid and possibly the drug company giving discounts. I sure hope we don’t have to sell the house and two of our 3 vehicles. If we sold all of them, I would have to take UBER everywhere.
I had my MRI brain scan last Thursday. I hate those loud and intrusive MRI sounds! The next day I got a call from the Oncologist that my brain scan was normal, which meant no cancer. A nice piece of news! I tried to get them to say that brain was SUPERIOR, but they wouldn’t budge. I will accept that, LOL.
My PET scan is scheduled for next Wednesday so we will know the extent of any spread at that time and I will post the results.
I think that is all the news I have right now. I am still trying to keep a positive attitude and rest when I can. Part of keeping that positive attitude is just knowing how many of you, my great family and friends, pray or send positive vibrations my way. I know I feel the love of all of you and if you are reading this, you have, and continue to, impact my life.
The picture on todays post is sort of special. It is a Peace Lily in bloom that I have had almost 9 years and it is from Teresa’s Celebration of Life. Of course, it had plenty of blooms when I first brought it home, but the blooms went away.
Since then it has bloomed a total of 3 times with a single bloom each time. The first one was in October 2014 on the exact same day as Shelia got custody of her two Grandchildren. The second time was exactly one year later. Both perhaps were signs of good things.
It bloomed again about 2 weeks ago, so I was hoping it was a sign that my tumor was stable. It was not to be. Two out of three I suppose. But perhaps it is a sign that I need peace.